Five minutes after I learned my mother had her
stroke, I called my sister, Kim, who lives in Flower Mound, to tell her. Kim
immediately got on the first flight to Amarillo, and arrived just in time to
sit through Mom's emergency brain surgery. She has been staying here since that
day.
She went home for a total of five days in
November, I think. But that's it. For two-and-a-half months, Kim has lived with
my dad instead of with her husband and 15-year-old son. Thank God Vince and
Cole understand. Unfortunately, Izzie and Raider probably don't understand too
much (the mini schnauzers).
But it's going to have to end. She and they
cannot go on this way. She has a family and a business to run. She has sanity
to retain. Most of it is still intact, but believe me, she and I are both
exhausted and stressed out because, truly, dealing with both of my parents'
illnesses and the effects these illnesses are having on each other, is like
Forrest Gump's box of chocolates: We never know what we're going to get. Every
day is different. Hell, every hour is different.
Figuring out how to send Kim home without
creating more stress for the both of us (and our families) is where we are now.
Kim, Vince, Dorsey (my husband) and I met for dinner last night (safely after
both parents' crises had been settled) to discuss moving forward.
We figured out my mom's new temporary living
arrangements, different from yesterday's temporary living arrangements,
courtesy once again of managed care insurance. But we haven't figured out how
to make sure my dad is OK from day to day, as well as how to manage being with
my mother every day.
As for my mom, I have come face to face
with the ugly, hateful reality of our elderly (no, my mother is NOT elderly,
but she's with a lot of people a lot older than she) being taken to nursing
homes and just left, for whatever reason. Some have families; some don't. Some
have families who visit regularly to sometimes, and some receive no visits at
all. I try not to judge families because I don't know every situation, but I can't
help it.
What I do get and know from seeing this sadness
is that I don't want it for my mom. Not now and not ever. I cannot stand
the thought of it.
In a perfect world, this never would have
happened, but in the next perfect world, we could afford to hire a private
nurse for my parents to live with them in their home (or one that is wheelchair
accessible). We cannot afford that. That option is off the table. So are
several other costly options.
I have learned that without lots of money, it's
impossible to give anyone ideal care. Even at nursing facilities, staff can be
the kindest, most caring, most competent in the world, but the facilities
aren't run with enough money for all the needs of all the residents to be met
perfectly. And we all know that if you're going to put a family member in a
nursing home, you darn sure better choose wisely, because not all are equal in
care, kindness and competence.
The control freak and the love in my sister and
me want my mom to be taken care of according to our standards 24 hours a day.
That's a sad reality that won't happen. So what do we do and how do we do it?
And how do we manage that while also making sure my dad's needs are
taken care of? (Because, no, he is in no way a caregiver for my mother; he is
not able.)
That's where we are. Kim leaves in a week to go
home for at least awhile.
We still don't have answers.
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